Thursday, November 24, 2011

Moving away from home back to home in one life time. I’m Ready to do it.

Moving away from home back to home in one life time.  I’m Ready

 



I'm starting my life over, how many people can say that about taking up Country accommodations. I don't live too far away from home (about a four hour drive  from here or so that sounds funny  saying that from the state of Virginia, when I was born in Philadelphia I lived there until I was Eighteen years old,  lived in Delaware for the past 33 years and all most 20 years in the same house..)  Our parents did their best to control us, but it didn’t work! We always had the upper hand (Just Joking Dad Oh did I mention Una dads girlfriend for past ten years one of the nicest lady in Virginia.  I have three wonderful sisters Virginia (Ginny), Lisa & Barbara and two great brothers Roy & my brother Douglas and not to Mention 6 nieces and 5 nephews 9 great nephews 4 great nephews but now,  where I’m moving to  is where my father (Roy) was born is a totally diffident life compared to being up north in Pennsylvania Delaware and Maryland. More convenient in getting thing done at a nice pace here in VA as well as enjoying a new friendship with someone you just met. I thought that it was important for me to do this  while  my nerve  is up to move that far. I feel like a teenager like leaving the nest all over again. Moving seems so much fun like selling everything I own and starting over fresh, and I’m scared that everyone will think I’m a weirdo and laugh at me that’s ok at least they would have a good laugh on me- I’ll make  new friends in Luray and Page County & the Shenandoah valley and my shared accommodation (32 of us sharing an apartment one store building in Stanly Virginia). The fact that I’m different also makes it harder because I’m not fully understood  on my sexual orientation , and I’m a nervous wreck that my apartments dweller  will be homophobic; I’m not sure how to tell them, should I tell them and give them all heart attacks immediately? Or wait until I get to know them better, I’m sure in time they will figural it out. Any advice on moving away from home in Delaware would be greatly appreciated. Will miss you all in Delaware, I hope if ever in Virginia you stop by the town of Stanly and look me up, I will never forgot  the staff at the University of Pennsylvania Hospital who gave me excellent care and a normal life back Thank you Dr.Lee and your staff. I'll be back every few months to see Dr Lee . and you thought you where rid of me  LOL. Someone asked me if I had to do this again would I ?  Yes I said you bet you your sweet bottom I would, the staff at Penn you are all the best and thank you for letting me start my life over in Virginia and letting me live life again.


Thursday, September 8, 2011

People using People

I noticed a strange facts about myself and other people in need of help. I have this big need to help people out when in need. Usually I give up something for this. But when people start to use me later and behave like I am their lacquey or something. Therefore my need for helping decreases and the need to become independent from them increases. It is difficult, because I sacrificed something that I needed to become independent. And even if I become independent after some time, the need for helping increases again, but I’m afraid of becoming a lacquey again. It’s like I imagine myself helping people in need and later these people turn me in their slave and I wake up from my dream, look around and see that reality is not like this, people are not as kind as I though. It ruins everything I believe in a person, and makes me a worse when they ask for my help because I’m always there for that person who always needs something for them self’s only, all I’m asking is give a little back in return. Just because I wrote is article like this does not mean it’s me, Just so you all know that.


Wednesday, August 24, 2011

Last IVIG Drip

I'm wishing and hoping that I‘ve a very smooth last treatment since this is the last one of IVIG this coming Sunday Morning at 7:00am . And I pray that this is just the ticket for me!! Many patients have done this very successfully and done it extremely well, as I’m doing by taking this treatment. I’m praying that this will work. I know I’m going win.

Quake shakes East Coast



I think this is his way in telling us to fixes the world now before we destroy it, Fires ,Floods. Poverty & Hunger. Though Virginia hadn't had a quake like Tuesday's in 67 years, it was mild by West Coast standards. California has seen 35 quakes of that size since 1944, when the last East Coast quake of this magnitude occurred. So the first thing everyone had to do was figure out what was happening. I was in the local pharmacy when the bottles starting to fall off the shelves, People were screaming and running out to the parking lot. For a moment I thought I was in a movie, I told some of the people that it would only last a minute which I should had said 10 Seconds. My cell phone did work and the only person I could get was Virginia and likewise with her, I think we were more worried about my dad and Una. My father did say that boomer the dog starting barking very loudly and nonstop before it hit them in Stanly Virginia and Luray county.

Sunday, August 7, 2011

Rudeness


I think it very rude when a person or persons do not respond back to say no thanks, not today or no I'm not interested in you, but thank for sending me a post of interest. All I'm saying is take one minute out just to send that little note. And don't be rude because your day will come back to bite you in the ass. I consider myself to be a “nice guy” that is rarely rude. There have been many instances in my ? years that I have had to be an a**hole. For the most part though, I prefer to treat people with dignity and respect. I am not talking about the occasional person you run into that is in a bad mood about something. That happens to everyone, most of the time these people keep to themselves. I am referring to the ones that a.) lash out at everyone they come into contact with and b.) the ones that offer unsolicited advice.

Tuesday, August 2, 2011

A Small set back!!


Just a small set back!! I will be on a Prednisone at home for the next nine days starting 08/01/2011, this should help with the (A1) rejection. I will keep you all posted as to how I’m doing and if not me my sister Virginia. As of today. My bronchoscopy showed a mild rejection (A1). This needs to be treated. It will be treated it with a prednisone taper. 60mg x 3 days, 50mg x 3 days, 40mg x 3 days, 30mg x 3 days, 20mg x 3 days, back to your baseline of 10mg daily. Also my numbers are down for my Kidneys, I was taken off all of Lasix until future notice and the last thing. I also have small infection in my lungs that will also be treated this with 2 weeks supply of Levaquin. Dose will be 750mg every other day. I must say that University of Pennsylvania is on top of thing as always, Belinda said if my numbers did not go back into normal range I would have to be admitted back to Penn, Where the food is really great cannot wait.(Not).It just as bad as my sister food. LOL. Just joking and I never said which sister did I. So don’t assume I meant Virginia.

Thursday, July 28, 2011

What is bronchoscopy/ lung biopsy?

What is bronchoscopy/ lung biopsy?

Bronchoscopy is a diagnostic procedure used to obtain a small amount of lung tissue and fluid samples, which are then examined under a microscope to help in diagnosing a change in your lung function. During this procedure, your lung doctor examines your lungs (bronchial tubes) and looks for abnormal conditions, such as infection, tumors, bleeding and abnormal sites.

Bronchoscopy provides important information about the condition of your transplanted lung(s) and for your treatment. You will be asked to sign a consent form prior to the test. Your consent tells that you understand the reason for the bronchoscopy, how it is done, possible alternatives, and possible risks.


What are the risks of a bronchoscopy?

The primary risk with bronchoscopy is bleeding from the site of the biopsy, but this occurs in less than 1% of patients. Other rare complications include lung collapse, hoarseness, sore nose or throat. You will be monitored closely for several hours after the procedure to make sure no complications arise.

Please note: If you have a heart murmur, heart valve problems or artificial joints, remind your doctor. You may need to take an antibiotic before the bronchoscopy as a precaution.


Instructions for patients having a bronchoscopy.

The office staff will set up the appointment for your bronchoscopy and call you with the date and time. Please be sure to follow these instructions:

  1. You must abstain from aspirin and ibuprofen-containing medications. This includes but is not limited to Advil. Motrin, Nuprin, and Aleve these medications can cause increased bleeding. Tylenol is OK. Notify your physician if you are taking blood thinning medication.
  2. You will be notified of arrival time and place of the bronchoscopy.
  3. Your doctor may order tests such as blood tests, an EKG, or a chest x-ray, to be performed before the procedure. These tests may be done in the physican's office, the hospital, or in an outside laboratory.
  4. On the night before the procedure, do not eat or drink anything after midnight, unless your doctor gives you different instructions.
  5. If you usally take medications in the morning, ask your doctor wheather you should take them as usual or if they should be taken after the test.
  6. When you come for the procedure, bring a list of any medications you are taking, along with the dose of each medication.
  7. On the day of the test, please arrive 30 minutes befor the appointment time.
  8. Please dress comfortably and leave valuables at home.
  9. Be sure to arrange for someone who will; be responsible for taking you home after testing. This person may arrive with you, or up to four hours after your arrival.


How is bronchoscopy performed?

  • In the procedure room, your temperature, pulse, and blood pressure will be taken.
  • A plastic clip will be placed on your finger to measure the oxygen in your blood during the procedure. This is known as a pulse oximeter.
  • Your heart rate will be monitored throughout the test, and you will receive oxygen.
  • An IV (an intravenous line, a thin plastic catheter which goes into your vein) will be started. This is used to give you medication as needed.
  • Medication may be used to make you drowsy and relaxed.
  • Your throat will be sprayed with a local anesthetic to make it numb. This will make you more comfortable when the scope is passed through the throat.
  • The bronchoscope is a long soft tube with a magnifying lass and light on the end. The tube is about as wide as a pencil. The scope is gently passed through your nose or mouth, and into your lungs.
  • You will be able to breathe easily throughout the procedure. The doctor will be able to see into the airways, and can take samples of tissue for biopsy through the scope. You will be observed closely by the nurse during the test and afterwards, until you are fully awake and able to leave the area for discharge.


How will I feel during bronchoscopy?

  • You might feel some discomfort as the scope is passed through your nose and throat. This will be minimal and it will last only about 10-15 seconds.
  • Usually there is a small amount of bleeding after the test if a biopsy is taken. You may notice that you cough up some blood tinged mucous. This will decrease after a few hours. If the bleeding increases or if it lasts longer than 24 hours, call your doctor.


When can I eat after bronchoscopy?

  • Two hours after the test, you will be able to take a few sips of water.
  • If you can swallow without a problem, you can eat and drink normally at that time. If not, wait another hour and then try sips of water again.


What should I do when I get home?

You may want to take it easy for the rest of the day after the test. If you received sedation you may feel tired or sleepy. Do not drive or operate machinery or sign any legal documents for the next 24 hours after the sedation.

  • Do not take aspirin or medications such as ibuprofen in the first 24 hours after the procedure.
  • Check the label of brand name medications to see if they contain ibuprofen or aspirin. These medications can increase bleeding.
  • Check with your doctor about any possible changes in your usual medications and ask when you can begin to take them again.
  • You may have a slight fever after the bronchoscopy and your doctor may suggest taking acetaminophen (for example Tylenol®) for fever or discomfort.


What symptoms should I report to the doctor after bronchoscopy?

  • Bleeding that lasts longer that 24 hours or if it increases (report amounts greater that blood-streaked mucus).
  • Fever (temperature over 100F) that lasts more than 24 hours.
  • Shortness of breath or chest pain.